Today is a difficult day. It's wasn't the weather. The weather is beautiful--a crisp, sunny October day perfect for all the things folks are trying to wrap up this time of year in our area. The school day went well. We just wrapped up a three day weekend and my students were filled with stories about trips to pumpkin patches, weddings, football games, and playing with friends. I had some delicious soup for lunch and enough iced tea to survive the wild afternoon. All good there. I received a text message in our Convent group that a new third generation "Convent" little had safely arrived to the world (Welcome Ella Rae). What a powerful thing to celebrate this fine day. I got watch my students play some volleyball right out my office door. I love watching kids do their thing. We are wrapping up the first quarter and I have a quiz to deliver tomorrow and I didn't even jam the copy machine as I ran it off. I know Mary is proud of me. I glance out the backdoor of the school and see Scott enjoying his time helping with varsity football. I am happy he is following this trail into coaching. I can look all around at this beautiful day I've been blessed with but the actual date is what brings the nagging sadness. We have arrived at the second anniversary of Mark's death. And this folks, makes today, despite all of the blessings and goodness that arrived with it, a difficult day.
I spent the weekend thinking back to Mark's last week here on Earth. The beautiful morning where we planned to take a short trip up to Gypsy Days-- even if it meant we drove up and turned right back around--just to get Mark out of the house he had been trapped in for the past few days. He was just not feeling well. Some virus or residual effects of his aggressive chemo and shingles had him badly beat down. But all that changed in an instant. The gorgeous Saturday morning was quickly tarnished. I thought about all of this over the weekend. Especially on Saturday. Whirling through my mind was the accidental fall, the swift decision made to transfer him to Sioux Falls, the flight, meeting Scott at the ER, the doctors, the experts, the machines, the friends there joining us in the waiting room,the family that later that week hoping for a miracle, the incredible palliative care team lead by Dr. Lie who answered every question with such compassion and kindness, (I loved her so much. What an incredible gift she shares in heartbreaking times.). I thought about the coaching colleagues who traveled to visit him, the dearest of friends who joined me throughout the week, the texts,the messages, the most precious basket filled with treasures from my dear Convent sisters (I still use the beautiful, soft blanket), the skilled, kind, patient neurosurgeon who looked me straight in the eye when I asked the hard stuff and answered compassionately that no, Mark would most likely never live independently at home again which my gut knew but I needed someone else to confirm this for me. I think of the witty, understanding priest who came to visit--sharing some humor and lots of faith with me at the most perfect time in this journey. I think of Scott and Katie and the hours they spent in the room. Everyone wanting none of this journey to be true, but all of us deep down knowing this incredible guy, who was as stubborn and competitive as anyone I knew, was slowly in the midst of a game he would never win. There was so much to absorb. So much we all wanted to change.
On Wednesday that week I asked for palliative care to come visit with us to help us with a plan. Their reassuring messages and help with decisions that were approaching for us, immensely helped our navigation of the first few days. I think deep down in both Scott and I's hearts we knew what to do. We knew Mark's wishes and knew that a transfer to hospice house for end of life care would be the next step. I could barely wrap my head around that phrase. We would continue to pray hard for our miracle, and they assured us at anytime we could call Dr. Lie and she and her earth angels would help us arrange the (worst) coming days. We spent the evening close to the bed and watched as Mark continued to battle this nightmare.
Thursday afternoon we made the difficult, but compassionate decision to move Mark to hospice care. We hadn't made an official decision but our hearts were telling us this was what he would want. We were following his decisions. He was not improving, some difficulties with his blood pressure were causing him difficulties with breathing, one number would go up and two others would sink. A constant mass of machines, trying to get him off sedation, keep his heart rate stable, breathing controlled...all of the things. All of the things that my favorite human had never struggled ONE day to control were now his biggest hurdle. This hero of mine was in incredible shape until they found this damn slow growing brain tumor. That tumor had ruined everything. He had never even been to the doctor in Pierre. He walked 5-8 miles a day. Ate a salad every day for lunch. He had to eat my cooking, but chose wisely usually. 💟 This could not be happening to THIS guy. But it was. And we needed to help him with his wishes. There was not a lot of discussion between Scott and I that late afternoon, but we had asked Katie to join us for supper. The three of us were meeting Scott's incredible friend posse at Buffalo Wild Wings....we needed a break from the room and from Mark's neighbor Sy who had kept the Critical Care unit hopping all day. He was our only comic relief of that time. ("Sy--get back in bed. You need to be dressed.) We made our way out of the unit but we were told we could come back whenever and tonight we could stay as long as we wanted. I was shocked this wasn't the norm---I had been able to stay with mom 24/7 across town at Sanford, but we could not in this situation. I told them I would be back.
We joined a busy crowd at BWW. I think Thursday nights are BOGO special, and let's face it, aren't most of us usually tired of the kitchen by that time of the week? I sat there looking around at the group of friends surrounding us and my heart was full. Our lives, already greatly changed, would be gravely different in the coming days. Hours of sadness and grief were ahead. Years if I'm being honest. Did I feel a little bit guilty pounding down chicken wings and an iced tea all while facing the most difficult decision I would make tomorrow? I did for a small while. But I just kept thinking how much joy this gathering would have brought Mark. He loved to visit and talk sports. He loved BWW and an occasional beer or five. (Now he didn't love BWW as much as Katie, but we had some epic times there. 2019 State B GBB Semis come to mind...full on cheering for ya, Osthus and Bulldogs. He was full on cheering in a crowded bar. And a bit sad he wasn't there competing with his Chargers ...) So I chose to take all of this scene in. Maybe we could find some smiles and laughter amongst the banter at the table and push the sadness away for even just a short while. And we did. I told Scott as we left that his dad would have LOVED everything about the meal. He agreed. (And imagine my surprise to meet up with a former Timber Lake student and his adorable family that evening...fully proving both Katie and Scott's claims that I know too many people. They were dying about this random encounter and still tease me about the folks I know. They actually sound a bit jealous.) Tomorrow would be tough. So very tough. Chicken wings, a few beverages, and dear friends were blessed distraction from our reality.
I made my way back to the dark, dreary parking lot. Navigating the parking at Avera is a talent all of it's own. They buzzed me into the unit and I perched by the bed. They were having trouble getting Sy to lie down and the nurses were now tag teaming on keeping him in bed. I was on the verge of tears and began to start laughing. Mark would have loved this madness going on. Absolutely would have loved it. It was like an old Carol Burnett scene and Harvey Korman (who I pictured as Sy) was winning. As the scenario calmed down, my tears began to flow. I sat by the bed and rested my head next to the best guy I ever met. He gave me the very best life. Did everything he could to take care of us--and we were a lot to wrangle--me being the most difficult. He never got too high or too low--so steady. I did all the overemotional stuff--and he was always there to be the voice of calm. We had shared some of life's greatest joys and life's greatest loss--burying a child. I could not imagine my life without him. I never dreamt I would outlive him. Ever. He very rarely did anything for himself and we had so many plans for the days where his schedule would slow down. I did NOT want this to end. And yet my gut, heart, mind...you name it, knew this was not how Mark wanted to live. His body was slowly letting us know this was not living. I stayed long into the evening finally leaving his bedside about 1:00 AM. We would have a long day tomorrow. The longest days were ahead of us....
Scott and I met at the hospital on that Friday morning and began what would be Mark's transition to the Dougherty House. Everyone was so kind. The plans were in motion and I let folks know we would be moving there sometime in the afternoon. Dr. Lie and the trauma surgeon I had loved were still on call for the week. They were an incredible amount of support. During all of this process they had to get an ambulance service to transfer Mark. I hadn't been doing much with any finances--had some cash on me to buy an iced tea during the day at the cafeteria, but I really hadn't even thought of bills or payments, etc. The kind nurse making arrangements came in and said that ambulance service required prepayment for the transfer so I would need to call this number. It was so odd to me. The nice guy came up to the room and gave me two prices--one if I would be paying by debit card or I could save money if I could pay by check. I was just so annoyed by this...like it was anything I wanted to even be concerned about, let alone be doing right now. I grabbed my wallet and saw a few check blanks in there...quite frankly, someone could have robbed me blind that week and I may not have known. For all of that week, I had holed up in the ICU room, snuggled in my Convent sister blanket, leaving only for the nugget ice machine and tea bags in the waiting room. I had rarely taken my purse anywhere. I don't really like carrying one and lost things regularly because of this. It drove Mark CRAZY. So seeing the check blanks in the side pocket, I saved that $23.63 like Senftner would have wanted me to do, and I wrote the check instead of using the debit card option. I think he would have loved my choice. And would have been proud that I managed to find my wallet without much trouble.
I remember the second year after Tate's death being much harder than the first. And I'm so sad I know this about grief and loss and navigating days when you'd rather be in bed. The second year without Mark has been just as difficult. I didn't know what to expect today. It's just a date on a calendar. But these anniversary days are hard no matter how much time has passed. I know people don't get that and this is okay. I'm glad they don't get it. I also know people do the best they can and my journey is very different than others facing loss. Grief, while often familiar, is a private journey. No one can tell us how to travel these days. Most just do the best they can. I like to think we have, but I know that's debatable. I remember driving to the funeral home after Tate died and looking over at the the drive up line at Taco John's. I wanted scream--how can anyone be ordering tacos? Do you not know that my child is gone? It took us very little time to realize that life does not stop with loss. Huge, unimaginable losses happen every day to all sorts of folks. And only by the love of family and friends and the grace of God do we survive the days that follow. We survive them as best we can--some days failing miserably, and other days doing a pretty solid job. There have been some incredible tough days this past trip around sun without Mark. I think of these as "The not- so-shiny-sunny days." The sun might be there, but he is not. There have also been some great days too, with the VERY people in the very BEST places--but they are all tinged with the thought "I wish Mark were here." He will be forever missed. My parents, Tate...all forever missed.
Year three....here we go.